Children participating in the ALS ice bucket challenge aimed at raising awareness and funds to fight the disease. Photo: NurPhoto/Corbis via Getty Images

A group of ALS patients is planning to protest outside of the FDA this week, hoping in some ways to replicate the protests of AIDS activists in the 1980s who were also upset with the pace of the search for treatment, Stat News reports.

The big picture: The patients had hoped to see quicker results from the $115 million raised by the ALS ice bucket challenge. They also advocated for the "right to try" legislation passed last year, and are similarly disappointed with the lack of results from that.

  • They're also frustrated by the news that other breakthrough new therapies have been approved for other diseases.

Like the AIDS activists in the 1980s, the patients have a list of specific therapies they want approved.

  • The three on the list are in different stages of development, but the ALS patients want them to be fast-tracked through the approval process.
  • Top officials with the FDA have invited the protesters to meet with them, as long as the drug makers also attend.

The other side: "These people are desperate, I can see that. I see them every day, it's a horrible disease," Jonathan Glass, the director of Emory University's ALS Center, told Stat.

  • "But fast-tracking things that don't work, or may not work, or might even be harmful is not the way to go."

Go deeper: The real drug pricing debate is upon us

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Scoop: Chinese biotech giant's U.S. subsidiary received PPP loan

Chinese biotech company BGI Genomics provided mobile labs for conducting COVID-19 tests at a sports center in Beijing. Photo credit: Xinhua/Chen Zhonghao via Getty Images.

A U.S. subsidiary of Chinese genomics company BGI Group received a loan through the Paycheck Protection Program (PPP), according to data on the program released by the U.S. Treasury Department this week.

Why it matters: BGI's close ties to the Chinese government, which is constructing a massive genetics database of its population, have raised concerns among U.S. officials.

Updated 1 hour ago - Politics & Policy

Coronavirus dashboard

Illustration: Aïda Amer/Axios

  1. Global: Total confirmed cases as of 11:30 a.m. ET: 12,081,232 — Total deaths: 550,440 — Total recoveries — 6,639,503Map.
  2. U.S.: Total confirmed cases as of 11:30 a.m. ET: 3,057,431 — Total deaths: 132,360 — Total recoveries: 953,420 — Total tested: 37,431,666Map.
  3. Public health: Cases rise in 33 states — Fauci says states with severe outbreaks "should seriously look at shutting down"
  4. Education: How Trump's push to reopen schools could backfire — College sports stare down a disaster in the fall.
  5. Jobs: 1.3 million Americans filed for unemployment last week.
  6. Travel: Over 1,000 TSA agents have tested positive.

Supreme Court says Manhattan prosecutors can obtain Trump's financial records

Photo: Saul Loeb/AFP via Getty Images

The Supreme Court on Thursday kept the fight over President Trump’s financial records alive, all but ensuring that those records won’t be made public before the election.

The big picture: The court ruled that presidents are not immune from investigation, denying Trump the sweeping grant of presidential power he had asked for. But the legal wrangling over Trump’s records, specifically, will continue — and they may end up in the hands of Manhattan prosecutors.