Dan Primack Mar 28, 2017
SaveSave story

Trump guest speaks out on proposed NIH cuts

John Crowley (l), Megan Crowley (r).(AP Photo/Pablo Martinez Monsivais)

John Crowley was stunned and grateful when his 20 year-old daughter Megan, who suffers from Pompe disease, was asked to be among President Trump's guests of honor at last month's Congressional Address, which coincided with Rare Disease Day. Now, however, the veteran biotech entrepreneur ― whose founding of a company to help Megan was turned into a film starring Harrison Ford ― is speaking out against proposed White House budget cuts to the National Institutes of Health that he said could harm a "virtuous circle" of research and development that helps patients.

Axios spoke to Crowley, currently chairman and CEO of publicly-traded Amicus Therapeutics, via phone. Takeaways: