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Photo: Sandra Baker/Getty Images

Patients and parents of children with life-threatening diseases may start asking for experimental gene editing as a form of treatment, STAT reports.

The big picture: Bioethicists, genetic engineers and lawmakers are now asking the same ethical questions that led to the 2018 law allowing "the right to try" experimental drugs prior to FDA approval: namely, do patients have a right to try gene editing technology?

What they're saying: "It's so intuitively simple: replace or correct a gene that's not functioning properly. There is so much hype, more and more people will think, I want that," bioethicist Alison Bateman-House of New York University told STAT.

  • In a potentially prescient move, lawmakers in California passed a law banning people from using unproven therapies amid concern that people would start biohacking themselves or using do-it-yourself CRISPR kits.
  • There are only 2 approved gene therapies in the U.S., one for a form of blindness and the other for spinal muscular atrophy.

The bottom line: "Parents are increasingly asking scientists for access to experimental compounds that have never even been tested in animals" to help save their sick children, per STAT, and more such pleas for genetic technologies are likely only a matter of time.

Go deeper: The cost of gene therapies could test the health care system

Go deeper

12 mins ago - Politics & Policy

Trump revokes ethics order barring former aides from lobbying

Photo: Spencer Platt via Getty

Shortly after pardoning members of Congress and lobbyists convicted on corruption charges, President Trump revoked an executive order barring former officials from lobbying for five years after leaving his administration.

Why it matters: The order, which was signed eight days after he took office, was an attempt to fulfill his campaign promise to “drain the swamp.”

  • But with less than 12 hours left in office, Trump has now removed those limitations on his own aides.

Trump pardons former fundraiser Elliott Broidy

President Trump has pardoned Elliott Broidy, a former top Republican fundraiser who pleaded guilty late last year to conspiring to violate foreign lobbying laws as part of a campaign to sway the administration on behalf of Chinese and Malaysian interests.

Why it matters: Broidy was a deputy finance chair for the Republican National Committee early in Trump’s presidency, and attempted to leverage his influence in the Trump administration on behalf of his clients. The president's decision to pardon Broidy represents one last favor for a prominent political ally.

Trump grants flurry of last-minute pardons

Photo: Jabin Botsford/The Washington Post via Getty Images

President Trump issued 73 pardons and commuted the sentences of 70 individuals, hours from leaving office early Wednesday, hours from leaving office.

Why it matters: It's a last-minute gift to some of the president's loyalists and an evident use of executive power with only hours left of his presidency. Axios reported in December that Trump planned to grant pardons to "every person who ever talked to me."

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